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DESCRIPTION:   'Title: The deadly state of surveillance capitalism in healt
 hcare\n   When: Saturday\, Aug 13\, 14:30 - 14:59 PDT\n   Where: Flamingo 
 - Sunset-Vista Ballroom (Crypto Privacy Village) - [1]Map\n   Speakers:And
 rea Downing\,Mike Mittelman\,Valencia Robinson\n\n   SpeakerBio:Andrea Dow
 ning\n   Andrea Downing is a cancer advocate turned security researcher. H
 er\n   work has been featured on CNN\, Fortune\, and The Verge\, and has\n
    catalyzed an urgent dialogue on national health privacy policy and the\
 n   need for protections outside of HIPAA. Andrea has co-founded a\n   non
 profit called The Light Collective to work with vulnerable patient\n   gro
 ups seeking digital rights and safe spaces for patient support\n   communi
 ties on social media.\n\n   SpeakerBio:Mike Mittelman\n   No BIO available
 \n\n   SpeakerBio:Valencia Robinson\n   Valencia Robinson is a breast canc
 er survivor\, co-founding member of\n   The Light Collective. As a patient
  advocate with 15 years experience\n   working in the breast cancer commun
 ity\, Valencia is working to advance\n   digital rights for patients and e
 nsure technologies affecting the\n   lives of her community have represent
 ation from people of color in the\n   governance and design.\n\n   Descrip
 tion:\n   Whether serving up medical misinformation through ads\, or broke
 ring\n   patients into predatory startups like Cerebral - patients going\n
    through the trauma of a diagnosis experience harm as they seek\n   know
 ledge online. This talk will focus on this specific research\, and\n   sha
 re a broader perspective on the deadly state of surveillance\n   capitalis
 m and ad targeting in healthcare.\n\n   In a recent study from researchers
  at Duke University and the patient\n   privacy-focused group the Light Co
 llective\, patient advocates who are\n   active in the hereditary cancer c
 ommunity and cancer support groups on\n   Facebook—including three who a
 re Facebook group admins—downloaded\n   and analyzed their data from the
  platform's "Off Facebook Activity"\n   feature in September and October. 
 The tool shows what information\n   third parties are sharing with Faceboo
 k and its parent company Meta\n   about your activity on other apps and we
 bsites. Along with the retail\n   and media sites that typically show up i
 n these reports\, the\n   researchers found that several genetic-testing a
 nd digital-medicine\n   companies had shared customer information with the
  social media giant\n   for ad targeting.\n\n   This talk will not only sh
 are examples of harm\, we will talk about\n   what our patient-led collect
 ive is doing to help patients take back\n   their privacy.\n\n   '\n\n   1
 . https://defcon.outel.org/consolidated_page.html#FlamingoThirdFloor\n\n\n
DTEND:20220813T215900Z
DTSTART:20220813T213000Z
LOCATION:CPV - Flamingo - Sunset-Vista Ballroom  (Crypto Privacy Village)
SUMMARY:The deadly state of surveillance capitalism in healthcare
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